Showing posts with label EBV. Show all posts
Showing posts with label EBV. Show all posts

Monday, March 26, 2012

Return to Hansa: It's working

Sorry I took so long to write about my our last day at Hansa. The benefit is I can see things that we did are already working. Our last day was really good and sad at the same time. It has become almost a home away from home. The hardest part was leaving our friends. We have gained a life long friendship though and even though it was hard to leave I wouldn't trade it for the world. We love you Body family!

The day started our with me seeing the doctor. I was scheduled for an hour. He needed 15 minutes. That was it. I still have a lot of work left to do but we had made some progress and he got kind of as a far as he could go this time. So we moved right on to the kids. We did some work with the myasms which are those diseases, illnesses, and conditions in your family history that are passed down energetically. They don't always activate, and just because you have a myasm doesn't mean you will get that illness but you could. You just want to clear all of that out. The big one that stands out for me is cancer. I have it and so does Brooke but it has skipped Jenna so far. Hopefully getting these issues addressed in the kids means they won't pass them down anymore. Again doesn't mean that we would definitely get cancer but that energy is there and could activate at any time unless you get it taken care of.

We didn't really have any big revelations. Dr. J did say that Brooke's ear looked night and day better. She still had some pain at about 5 am in the morning so I was really nervous about our flight. He gave us a herbal remedy to take for the pain. Just to be safe I did give her some advil and found the ear plugs designed for flying that are open on the end to help regulate pressure. The kids did amazing on the flight and Brooke has had no complaints since.

Since we have been home things have been crazy as is usual around here. We have just been busy and I started not feeling good. I realized right away what my mistake was. When I was at Hansa I didn't really do any detox this time so I really should have come straight home and got in the sauna. Having the energetic treatments got things moving in my body and I wasn't doing anything to get the junk out. Then I started to have my usual sore throat that I get a day or two after flying. Weather it activates my Ebstein Barr or what I don't know but it happens I think every time I fly. This time I woke up with my eyes stuck shut and a bad headache. I kind of started to panic. Please not pink eye and no antibiotics. Well 24 hours later I am feeling much improved. I jumped all over detoxing and it seems to have worked. I did the sauna once Saturday, twice yesterday, plus took detox bath, and started taking my EmergenC. I also went to the health food store to try and find a remedy for my eyes. The lady suggested Rue Fennel drops mixed with purified water as an eye wash. 3 doses of that during the day yesterday and no problems with my eyes this morning. I will definitely be continuing this protocol for the next day or two to make sure I really knock it out. I also made Asian Ginger Chicken soup for dinner. It is has spinach and mushrooms and I threw in some chicken for my husband. It is supposed to be healing and was perfect way to end my day. 

Back to the girls. They both have a few remedies to take for the next 30 days. I was excited to hear it was only 30 days. Jenna is taking the same ones for Lyme and neurotoxins I originally took. I couldn't be more proud of my girls. These remedies don't exactly taste great and they do it 3 times a day without a fight. Already we have seen an improvement with Jenna's stomach issues. She has suffered with horrible gas since she was little. I don't think she has had any since we got back. It's the little things sometimes. It is just more confirmation that we are doing the right thing. I can't wait to see what happens over the next few weeks for both girls. I am expecting big things. I got our our paperwork and test results and took some time to look them over on the flight home. The one thing that really stuck out to me was Jenna's vitality. Her little body is only functioning at about 50%. We didn't talk about that specific number so I am going to email the doc and get some more information. Hopefully her numbers will increase rapidly now that we are on the right path. If she has done this will functioning at only about half of what she should I would say she is in for big things in her future. 

Our biggest challenge at the moment is this possible CCSVI issue for me. It is all so new and there are of course no guarantees that the "angioplasty" to open up your veins will work. There is just a lot of unknowns right now. I am still feeling okay with going to get the scans done if we can come up with money. Then we can go from there. Lots of research and prayers ahead. I am feel beyond blessed though that we found Hansa. We are on our way to better health and I couldn't be more excited.

Friday, September 23, 2011

It's going to be a long road- UPDATED!

Faith is moving ahead before knowing how! (from Rick Warren I think)

Sometimes I swear I hear the Jeopardy theme song playing in my head. It makes me feel like I am running out of time. Part of that is due to the fact that I have been holding onto a piece of news that I want to share but haven't been given the official okay to do so. I was supposed to get the go ahead yesterday and it didn't happen. Go figure. At this point the actual "thing" may have taken place before I am allowed to speak. So maybe by the time I get to the end of this update and I can throw it in. Otherwise you may get a one or two sentence update later.

*So here is the news I have been holding onto. Lyme has robbed me of some things in my life but this is a big one. As of October 5th I will no longer have a job. Lyme has robbed me of a 13 year career in the Fire Service. I am not going to let this latest thing keep me down. I have to believe God has bigger and better things for me but I will admit it hurts. I always figured that if I left the Fire Service it would be my choice. This was certainly not my choice. I will miss my Fire Department family more than most people will know. All though I have worked at a couple of different agencies in San Diego, it has been my privelage to serve the San Marcos Fire Department for the last 6 yrs. Thank you all for your support during this rough time in my families life. We will be forever greatful.

So let me move onto what I can tell you about. I can tell you that the last two weeks that I have been back on abx have kicked my butt. So many of my symptoms that had diminished have come back. I guess that means there is a mass murder of bugs going on so that is part is good. It is what I have to endure that is not. My mini seizures or twitching, the weakness and creepy-crawly feeling in my arms, insomnia, needing to sleep during the day, the list goes on...have all come back. The muscle spasms and ringing in my ears is probably the worst it has ever been. I am not back at my worst but probably not far from it.

With that being said, when the doctor asked this morning if I had any improvement I had to say no. He responds that I am "a tough nut to crack". Ya think! I could tell he is frustrated for me. We discussed a number of different things at this quick visit so here is the run down. He doesn't have a strong opinion on that MRS 2000 mat thing that I tried a month or so ago. He says it works for some, not for others its just up to me if I want to try it. He is not as supportive of HBOT therapy as I thought. He is not against it but has not seen any real results in his patients that have used it. He prefers a cheaper therapy called ozone instead. You have some blood taken out, ozonated, and put back in. (I know that's not really an explanation but the general idea) It is supposed to do some good things. He definitely likes the Rife, coil, what-ever-you-want-to-call-it-machine. He gave us the name of one to check out. So I need to look into that when I am done here. We definitely talked about this IV rifampin deal. As most of you know, we still haven't been able to get this medication. Up here in the states, it would be about $4000 for 2 months and my insurance won't cover it. In Mexico, it should be closer to $600 for 2 months. We just haven't been able to track it down. He believes in this so much though that he still wants us to try and do this. So we are continuing to tap our family resources through friends and contacts to find it. My doc is trying to go through a Mexican hospital and see if he can buy it himself. I am just praying we can get this soon and get going. We are prepared to make the trip we just need a location that has it. He also clarified the 60 days straight would be a minimum. To really give it a shot we should go for 120 days straight. Minimum of an hour a day for a 120 days...sounds like fun. Guess it would be a good time to read my Bible. Then we may switch to another IV med, that is knew. He basically called it "super rocephin". Needless to say it looks like I won't be done with IV's anytime soon. He did say I should be doing fish oil and also to try something new...bamboo extract. Easily have to be at about 40+ pills a day when I am taking everything with these new additions. You wouldn't think I would have any room left for food. I know you have heard it before, but once again I am going to try to buckle down on the diet. That is probably my biggest challenge...quick/easy, taste, and money have always won out over the alternative. So I will try once again to change my eating habits. :)

I know this maybe backwards but now on to the real reason for my appointment today. "Your blood tests are too complicated to give you over the phone, the doctor wants to see you." That is the message I got from my doctors office earlier this week. Too complicated...um okay. I figured it meant something was not "normal". With this disease though nothing is ever normal. So after we discussed everything else I asked for my complicated results. My CD-57 is up to 60. So that is good. It needs to much higher but 60 at least means my immune system may be functioning on some level. Candida levels were good. YAY! Vitamin D is finally normal. So 15,000 units a day of Vitamin D it is for me. Now the not so great news. I have high/positive tests for four other viruses. Now this wasn't a complete shock since I know a lot of Lymies have these issues but it still doesn't make me happy. It doesn't mean that these are infections are current but they are present in my system. I don't know enough to say how common it is for them to reactivate or what even their dormant presence does to my system but bottom line is I don't want four viruses, two co-infections, and lyme hanging out in my body. That is a lot this body has been enduring for all of these years. Here is the list...Human Herpes Virus Type 6 (HHV6), Epstein Barr Virus (EBV), Mycoplasma Pneumoniae, and Chylamydia Pneumoniae ( and no this is NOT the std). The last two are forms of pneumonia which I have had at least twice growing up. So anyways, maybe this plays into why things haven't been as easy to solve. I haven't made the improvements the doctor expected.

Lots to think about for sure. With that, I guess I will have to come back a little later with my other piece of news. Still waiting for the official okay to say something. I guess nothing super bad will happen if I spill the beans first but I am using my patience and waiting until I am supposed to.

P.S. My wonderful extended "family" is working on a fundraiser to help my family out. I will keep you posted on the details as I get them. Thank you for all your hard work...you know who you are! I love you all.